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Chasing the Intact Mind - How the Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them... Chasing the Intact Mind - How the Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them Most
Amy S. F. Lutz
R910 R838 Discovery Miles 8 380 Save R72 (8%) Ships in 10 - 15 working days

A comprehensive introduction to the concept of the "intact mind" and how it affects disability policy and practice. The concept of the intact mind, first described in a 2006 memoir, refers to the idea that inside every autistic child is an intelligent, typical child waiting to be liberated by the right diet, the right treatment intervention, the right combination of supports and accommodations. The sentiment itself is not new. Emerging largely out of psychoanalytic theory dating back to the end of the 19th century, the intact mind was later amplified in memoirs, where parents wrote of their tireless efforts to free their children from the grip of autism. Though the idea gives hope to parents devastated by a child's diagnosis, Amy Lutz argues that it has also contributed to widespread dismantling of services badly needed by severely disabled children and their families. In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current policy and practice affecting those with autism. Lutz provides a historical analysis of the intact mind narrative and describes how the concept—originally unique to autism—has come to inform current debates at the heart of intellectual and developmental disability practice and policy in the United States, including battles over sheltered workshops, legal guardianship, and facilitated communication. Lutz argues that focusing on the intact mind and marginalizing those with severe disability reproduces historic patterns of discrimination that yoked human worth to intelligence, and that it is only by making space for the impaired mind that we will be able to resolve these ongoing clashes—as well as even larger questions of personhood, dependency, and care.

We Walk - Life with Severe Autism (Hardcover): Amy S. F. Lutz We Walk - Life with Severe Autism (Hardcover)
Amy S. F. Lutz
R613 R493 Discovery Miles 4 930 Save R120 (20%) Ships in 10 - 15 working days

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience-the positive and the negative-as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly-and humanly-examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.

Each Day I Like It Better - Autism, ECT, and the Treatment of Our Most Impaired Children (Paperback): Amy S. F. Lutz Each Day I Like It Better - Autism, ECT, and the Treatment of Our Most Impaired Children (Paperback)
Amy S. F. Lutz
R1,304 R1,032 Discovery Miles 10 320 Save R272 (21%) Ships in 12 - 17 working days

In the fall of 2009, Amy Lutz and her husband, Andy, struggled with one of the worst decisions parents could possibly face: whether they could safely keep their autistic ten-year-old son, Jonah, at home any longer. Multiple medication trials, a long procession of behavior modification strategies, and even an almost year-long hospitalization had all failed to control his violent rages. Desperate to stop the attacks that endangered family members, caregivers, and even Jonah himself, Amy and Andy decided to try the controversial procedure of electroconvulsive therapy or ECT. Over the last three years, Jonah has received 136 treatments. His aggression has greatly diminished, and for the first time Jonah, now fourteen, is moving to a less restricted school.


"Each Day I Like It Better" recounts the journeys of Jonah and seven other children and their families (interviewed by the author) in their quests for appropriate educational placements and therapeutic interventions. The author describes their varied, but mostly successful, experiences with ECT.


A survey of research on pediatric ECT is incorporated into the narrative, and a foreword by child psychiatrist Dirk Dhossche and ECT researcher and practitioner Charles Kellner explains how ECT works, the side effects patients may experience, and its current use in the treatment of autism, catatonia, and violent behavior in children.

Each Day I Like It Better - Autism, ECT, and the Treatment of Our Most Impaired Children (Hardcover): Amy S. F. Lutz Each Day I Like It Better - Autism, ECT, and the Treatment of Our Most Impaired Children (Hardcover)
Amy S. F. Lutz
R2,589 R2,016 Discovery Miles 20 160 Save R573 (22%) Ships in 12 - 17 working days

In the fall of 2009, Amy Lutz and her husband, Andy, struggled with one of the worst decisions parents could possibly face: whether they could safely keep their autistic ten-year-old son, Jonah, at home any longer. Multiple medication trials, a long procession of behavior modification strategies, and even an almost year-long hospitalization had all failed to control his violent rages. Desperate to stop the attacks that endangered family members, caregivers, and even Jonah himself, Amy and Andy decided to try the controversial procedure of electroconvulsive therapy or ECT. Over the last three years, Jonah has received 136 treatments. His aggression has greatly diminished, and for the first time Jonah, now fourteen, is moving to a less restricted school.


"Each Day I Like It Better" recounts the journeys of Jonah and seven other children and their families (interviewed by the author) in their quests for appropriate educational placements and therapeutic interventions. The author describes their varied, but mostly successful, experiences with ECT.


A survey of research on pediatric ECT is incorporated into the narrative, and a foreword by child psychiatrist Dirk Dhossche and ECT researcher and practitioner Charles Kellner explains how ECT works, the side effects patients may experience, and its current use in the treatment of autism, catatonia, and violent behavior in children.

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